Standard of Care Highlights
(Gallery 1)

The Hope and Light Foundation
and Emory University School of Medicine Department of Neurology Center for
Neurodegenerative Disease Present:

Conference on Standard of Care and Therapeutic Advances
for Spinal Muscular Atrophy (SMA)


The Hope and Light Foundation took on the ambitious project of organizing a regional conference to disseminate information about the care of children affected by SMA. The "Conference on Standard of Care and Therapeutic Advances for SMA" took place on May 2, 2009 and was held in partnership with the Emory University School of Medicine, Department of Neurology.

The day long program focused on the Standard of Care for SMA and attracted doctors and therapists from all over the southeast. The foundation flew in SMA experts to Atlanta, GA to update the medical community about recent advances in care and new therapeutic strategies. The panel focused on key areas of SMA disease management: diagnosis, pulmonary care, gastrointestinal and nutritional issues, orthopedics and rehabilitation.

"This type of conference was another first for SMA, and Hope and Light. The information disseminated will improve the medical care and raise the quality of information given to parents trying their best to care for and extend the lives of their children."

Stephanie Miller, President of the Hope & Light Foundation


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Hope and Light 2009 Conference Hope and Light 2009 Conference Hope and Light 2009 Conference Hope and Light 2009 Conference Hope and Light 2009 Conference Hope and Light 2009 Conference Hope and Light 2009 Conference Hope and Light 2009 Conference Hope and Light 2009 Conference Hope and Light 2009 Conference Hope and Light 2009 Conference Hope and Light 2009 Conference Hope and Light 2009 Conference
More Pictures in Gallery 2